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Liliana shared the following update about Brian’s progress on April 14th: "Following a 40-day hospital stay, he was finally able to leave. He was admitted on March 4th, underwent central line surgery, received a 3-day cycle of ATG to prevent GVHD, underwent 4 days of chemotherapy the following week, received his new cells on March 17th, and was then placed in quarantine in his room. Even in the midst of such a challenging experience for Brian, we firmly believe that the power of prayer helped us persevere each day. We are eternally grateful for your prayers, care, love, and support. Brian is not home yet, but he is close to the hospital, and he still has several appointments to follow. We are still in need of prayers for a successful transplant. We are thankful!"
The Rojas family’s story is one of resilience in the face of adversity.
Brian, the younger of the two brothers, was diagnosed with Adrenoleukodystrophy (ALD) at the age of four. Thanks to early diagnosis and participation in a gene therapy trial, Brian has lived a relatively healthy life for the past ten years. However, in a heartbreaking turn, Brian has recently been diagnosed with Myelodysplastic Syndromes (MDS), a rare blood disorder, and now urgently needs a stem cell transplant.
Brandon, the eldest brother, was also diagnosed with Adrenoleukodystrophy (ALD) in August 2014. ALD is a rare and progressive neurological disorder. Brandon has been fighting ALD for 11 years and requires constant medical care.
The Rojas family is grateful for the love and support of the community. Thank you from the bottom of our hearts for your generosity, support, and love during this incredibly challenging time.
Brian, Liliana, Brandon, and Paul
Brian
Brandon
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